Welcome To My "HEP C" Life

Hepatitis C is a blood disease that affects the liver. There is a tx that I am now on which is a mixture of "interferon" injections 1x a week and 1200mg in pill form of "Ribavirin" dailly. This is an extreme and rigorous 48 week treatment and I have started september 22nd 2006

Name:
Location: moundsview, Minnesota, United States

Tuesday, October 03, 2006

Game Over

Got to my tuesday night meeting. It went pretty well. I am floating through life right now in low gear, and so follows my thoughts. But I made it. And now I am back home. I'm done. complete. gameover. I will put on a movie, then start to float away. Time to fade into the recesses of my dreams and sleep until I wake another day.

I Just Have To

Before I started this beautiful journey, I was told by my Nurse that I will have my dragging, not want to do anything, just completely exhausted, drowning in fatigue days. She said that I'm just not going to want to do anything. She said some days it will feel like A cement truck will have backed up to my house and filled my body and soul with wet concrete. She said it would be hard, very hard to go on somedays, but I just had to. I just had to. I just had to.

And so I am...

I went into my humble room and laid beneath the blankets. I took the time to lay my head down and say hello to my friendly pillow. I sat back and laid back and then thought about what my nurse had said. And so I got up, and turned the lights on and now I'm doing something. I'm moving around, getting somethings done, getting my heart to beat. I'm moving around, and making some sounds, I'm not going to feel even a little bit down.

And so I am going on with my day. Why? Because this is one of those days. So I just have to, I just have to, I just have to....

Bring your body and your mind will follow. And I'm not letting my mind go just yet.

Lingering Moments...

Wondering where my energy went. I have done this and that but it all adds up to nothing. One thing is good, I don't feel sick. I don't have a headache. My skin isn't itching. I don't have the chills. But I do lack energy. I sure wish I was a rock ontop of a large hill right now. then you could start to push me down, I would gain momentum and keep going with the flow. But i can't make it up that hill. I don't even feel like looking at hills. Who even brought up the subject of a hill?

I am going to go lay down for a nap. Then wake up and start over. I just lack anything right now. My mind is tired of thinking of nothing. I know its the treatment. I know its the medicine. I know I will feel just this ugggh after I wake up. But I need a nap. My dreams are calling me.

I'm Awake

The morning gives me its hand and pats me on the back and tell's me as it wakes me up with a smile, To reach up and feel withing the beauty of this brand new day...And I am.

I got to sleep just fine and only woke up a couple times. Normal from all the water I drink. I'm awake, body softly sore from all I did yesterday. Just an all around muscle tiredness. Nothing I can't let get to me, I have 46 more weeks of injections and pills to go and this fatigue is to get worse. Then I have the time when I stop the treatment, Most say that i will not feel great right away. It will take 6-9+ months to get back to 80% of what people would consider normal. I'll have been giving my body a run for its money by then and its going to be just natural to understand that this is a Loooooong journey.

It's said that my body will start to get used to my weekly injectons and that nausea and chills and all that other fun stuff that so lovely happens after my injection will subside to not be "AS" extreme. But I can still expect to feel something of those after effects those days after the injections. Also the ongoing of my fatigue will rise and continue rising until the end of my treatment.

I talked to my nurse yesterday about what happened with my first lab test. I'm not sure if I told you, I got a call from the doctors office, and the nurse had told me that something with my paperwork with my Labs that I had last friday got all screwy, so she asked if I could come in and get another lab done. So I went up there and got my labs done again, It was nice to get front row service. I walked back there and passed a good 10 people sitting in their chairs, waiting, cause that is what you do at a doctors office,wait. And she took my blood right away and I was out of there. No more than a 4 minute visit and that includes walking from my car and back to where they drew my blood. But there is a problem with doing my labs on a monday when I took my shot on a friday. The levels are going to be so out of wack because that is what my injections do, so to get an accurate count, that is why I do it on fridays right before I do a shot again. Then my levels will be at there highest of what they need to search for, because most of the interferon is out of my body.

My Hep Nurse said I will be going in so many times weekly, then monthly, that this little situation was no big problem.

***I've become teary eyed over the stupidest things. I started to tear up at the end of R.V. with Robin Williams, and this morning I got a tear in my eye watching the end of "Studio 60 on the sunset strip" I am a sensitive guy, but I can tell this is a side effect of the treatment. But you have to give me the benifit of the doubt, it was such a happy "The Family Comes together and becomes stronger" moment at the end of R.V., you would of shed a tear too. lol.